At Duke today we got some great news, they let me get the final infusion of ippy and nivo! My liver enzymes are still a little messed up (but back to the elevated levels from 6 weeks ago), so I was a little surprised to get the final infusion today. I was thinking maybe they would just move onto nivo, but while I’m writing this, the ippy is dripping into me. It was literally the last day before I’d be removed from the trial (per the trial protocol). After waiting what seemed like an eternity while the medical team consulted with the company running the trial, they decided to go ahead and give it to me, since I really have no symptoms at this point.
The MRI also showed some encouraging signs. First, I need to state that the tumor had gotten a little bigger since the previous MRI, so that is obviously not good. However, the Dr said in this type of trial the tumor almost always looks worse before it looks better. There were more subtle signs, such as little cavities in the tumor itself and the ventricles of the brain opening a bit more. Again a picture is worth 1000 words so I’ll try and get some pictures up in the coming days.
It’s certainly a rollercoaster of emotions. I’m EXTREMELY blessed to be doing as well as I am, but with this disease everything can be looking good one minute and not so good the next. So thank you everyone for your continued thoughts and prayers!
It has been a long day at Duke, we got here at 8 AM and probably won’t leave until 8 PM. Luckily they employ some great sushi chefs, so we’ve been eating well today!