We started on this journey a little over a year ago and today I’m happy to announce that today’s MRI showed no signs of progression. I feel truly blessed to have made it this long without a progression. From what I know the vast majority of people with a stage 4 Glioblastoma have had a recurrence by now. I’m basing that on the mean survival rate after diagnosis is something like 14 months…I don’t know where that comes from, but it’s thrown around a lot. I am by no means out of the woods, and with this disease I don’t think you ever really are out of the woods, so we’ll keep fighting.
While we were talking with the our nurse Jennifer today, we realized how so many things have gone right with the treatment. A great surgery, followed by the right clinical trial, at the right time. Add on to that a great team at Wake Forest looking after us. The medical side is undoubtedly a big piece of the success to date, but I also feel there are so many other factors which are contributing factors. The list is just too long to go into in this post so stayed tuned for future posts.
As my friend Ted recommended a while back, tonight we raised a delicious glass of carrot, broccoli, and cauliflower juice to celebrate (Katelyn, since it was a celebration juice we left out the Garlic). Below is a picture of this delicious treat. Don’t let the puke green color deceive you. And no Jennifer, it does not have twinkies, bacon, or oreos in it 🙂
On a more serious note, I know we’ve got a lot of people praying for us and we ask that you keep my cousin Mark and his wife Tracy in your prayers as they are going through a very difficult time.