It has been a busy past couple weeks since my infusion at Duke. At long last I’ve posted a couple pictures of the MRI images below. While they might look a bit scary at first, I want to let everyone know that I’m feeling completely fine…I can say with confidence that I really don’t show any signs of the disease. The biggest change is how tired I am at night. Get much past 10:30 and I’m out of it, sometimes a bit earlier, but I’m consistently getting 9 hours of sleep a night…maybe that’s just me getting old!
The second scary thing that happened this past week was I had a focal seizure. I had to look focal seizure up to see what it was, but it’s basically a seizure that shuts down a part of your brain for maybe a minute or so (at least in my case). Mine presented itself in the inability to speak for about 1 minute. My wife asked me what I was going to put on my sandwich, and while I could think the words in my head, I just couldn’t get my mouth to move. Once I wrote down what I was trying to say, I could immediately say it. It was a very bizarre experience to say the least. The Dr at Duke just told me to up my Keppra dose to 1000 mg twice a day and I’ve been fine since.
So next Monday we head up to Duke for the 4th and final infusion of Ippy and Nivo, then it just goes down to Nivo. Also I want to remind everyone of the Walk A Head of Cancer, being held on Father’s day in my hometown of Carroll, IA. Details can be found here:
Thanks to everyone who has already donated!