We had another long day at Duke today. We arrived shortly after 9 AM and didn’t get out until about 7 PM. Today though we had the first MRI since I started the study, which began 6 weeks ago. Unfortunately, the tumor cavity collapsed, making it very difficult to compare this MRI to the last. So this MRI will now serve as the comparison for future MRI’s.
The tumor cavity collapsing isn’t as bad as it probably sounds. It was described to us like taking scoops out of Jello and eventually the sides just cave in. It shouldn’t cause any negative neurological problems, it’s just the brain figuring out there is more room available and it’s using the available space. When it collapsed it did relieve some pressure and the brain did start to heal in a couple different ways…the folds on the brain starting to appear and the ventricle is also starting to open up more.
The other part about the tumor collapse is the fact that the “white” area (tumor or scar tissue) on the MRI is much brighter. The Dr basically used the analogy of a red balloon being blown up to the point where it looks pink. Once you let the air out, it contracts and it’s red again. I’ll have to post some pictures as they really show what is going on. There was one area of concern that they are going to be keeping an eye on, but could be treatment related.
So overall the MRI showed some positives and negatives should know much more in 6 weeks I get the next MRI. I also got my 3rd infusion of ippy and nivo. So just one more infusion of the combination, and then it just goes down to nivo.
All in all things continue to go pretty well. No real side effects from the ippy or nivo, so I’m lucky there. I’ll do another post in a couple days once I get some of the lab results back.