Today we were supposed to get the 4th and final infusion of Ippy and Nivo, but unfortunately one of my liver enzymes was too high to give me the infusions. At this point we really aren’t sure what to think. On one hand since this enzyme has been going up for the past two visits, it would seem to indicate the drug is working or at least doing something. On the other hand it’s a bit frustrating to be so close to getting all the drugs you can to try and fight the cancer, only to be turned away at the last minute.
For now we are just going to focus on getting my liver healthy again and go from there. That is going to require blood tests every 3 days until the numbers get back in line. However if they don’t get back in line I’m going to have to go on steroids, which I really want to avoid.
As far as what that means for the trial we really aren’t sure. We aren’t sure if we’ll skip the last infusion of Ippy and Nivo, go right to Nivo, or what. As far as we know though we’ll get the next MRI on June 23rd. Assuming the liver numbers get back in line, we should know more on the trial in the next week or so.
The other thing that was done today was we got a CT scan of my chest as I have had a cough lately, but it came back completely normal.
I’d say overall I’m feeling good, just a little tired. We’ll keep you updated.
One final note, the Walk A Head of Cancer is coming up in a couple weeks, so there is still time to donate to fund brain cancer research.
Thanks to everyone who has already contributed!